Reports & Publications

* “World Health Organization & World Alliance”.

World Alliance of Organizations for the Prevention of Birth Defects. 2000.
Society and genetics. WAOPBD, VSOP, Soestdijk, The Netherlands.

* “Services for the prevention and management of genetic disorders in developing countries”.

World Health Organization & World Alliance.
1999, Geneva, Switzerland.

* World Health Organization. 2000.

“Primary health care approaches for prevention and control of congenital and genetic disorders”. WHO, WHO/HGN/WG/00.1. Geneva, Switzerland

* “Delivery of Genetic Services in developing countries,”

V. Penchaszadeh, 2000, Genetics and Public Health in the 21st Century,
Oxford University Press 2000

* Collaboration in Medical Genetics

Report WHO- meeting,Toronto, Canada, 2002,
World Health Organization satellite consultation
“community genetic services in Latin America and regional networks of medical genetics”.
Kofman S, Penchaszadeh V, Porto Alegre, Brazil 2003

* “Priority Medicines for Europe and the World” (NL/EU/WHO- conf., The Hague, Nov. 2004)

Warren Kaplan & Richard Laing, WHO,
Report of a NL/EU/WHO- high level meeting in the Hague, 18 November 2004
Geneva/ the Hague, 2005.

* “Strengthening Care and Prevention of Congenital Malformations and of Genetic Disorders as a Cause of Mortality and Life-Long Disability in Low-Resource Countries”

Christianson, A, 2004

* “The Increasing Role of Nutrition and Genomics in the Prevention and Treatment of Disease”.

Poortman, Y, Eskes, T. 2004, 140 p., ISBN 90-5911-407-8

* “Global Partnership of Scientists, Doctors and Patient Organizations”

in “Discovery to delivery” ; Ysbrand Poortman
Bibliotheca Alexandria, 2005, 295 –303

* “Strengthening community oriented genetic services in Oman/Gulf Region and on improving public and professional awareness for the prevention, diagnosis and treatment of genetic and congenital conditions”.

I. Nippert, Y. Poortman, H. Neitzel
World Alliance consultation paper, April 2005

* “The First International Conference on Birth Defects and Disabilities in the Developing World”

Johannesburg (South Africa), 6 – 10 August 2001
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* “Global Partnership of Scientists, Doctors and Patient organizations”

chapter 27; p. 295 - 302 in “From Discovery to Delivery”, ISBN 977-6163-01-7;
Bibliotheca Alexandrina, Alexandria, Egypt, 2005

* “Oman declaration”

Ministry of Health, Sultan Quaboos University, World Alliance of Organizations for the prevention and treatment of genetic and congenital disorders, the March of Dimes Foundation.
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* “Paediatric Medicines: a view from patient organizations”

chapter 3; p. 13 - 24 in “Guide to Paediatric Clinical Research”, ISBN-10:3-8055-8201-3;
Karger, Basel, 2007

* “Prevention of Genetic and Congenital Disorders”

chapter 25; p. 163 - 176 in “Changing Lives”,ISBN 978-977-6163-61-4
Bibliotheca Alexandrina, Alexandria, Egypt, 2007
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* “It’s My Life”

142 p, ISBN 90 5911 538-4
Aspekt, Soesterberg, 2007
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