List of meetings of the Alliance
| 1994 | New York | Prevention of Birth Defects March of Dimes |
| 1995 | Berlin | Prevention of Birth Defects in the Era of New Genetics European Society of Human Genetics |
| 1996 | The Hague | Medical genetics, therapy and society Dutch (VSOP) and European Alliance of Parent/Patient organizations (EAGS) |
| Rio de Janeiro | Worldwide Epidemiology of Birth Defects International Federation Human Genetics Societies | |
| 1997 | Genoa | Rare diseases; Genetic testing and its implications European Society of Human Genetics |
| Cape Town | Integrated Genetic Services; Partnerships between Developing and Industrialized
Countries International Clearinghouse for BD- Monitoring Systems |
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| 1998 | Kiev | Ukrainian Birth Defect Programme Ukrainian Alliance for the Prevention of Birth Defects |
| Amritsar | Prevention, Genetics and Diseases in Developing Countries Indian Alliance | |
| 1999 | The Hague | Prevention and management of genetic disease Dutch Alliance of Genetic Support groups (VSOP) |
| Riyadh | Arab Group for Genetic Disorders (AGGD) | |
| 2000 | Matsue | Gene therapy VIth Scientific Meeting of the International Federation of Teratology Societies |
| Amsterdam | Food, genetics, disease & prevention Position of women, reproduction and disease | |
| 2001 | Vienna | Implementation of WHO/WAOPBD- report on Services for Prevention and Management of Genetic Disorders in developing countries |
| 2001 | Johannesburg | Birth Defects and Disabilities |
| 2004 | The Hague | Epidemiological transitions and actions for innovation |
| 2005 | Beijing | Birth Defects and Disabilities |
